We looked around for a model Asian user group in the country but could not find one. The first step was to build trust with users and the community and start a group that people would feel free to come to. The issues that needed addressing were:
- Confidentiality
- How to set up users group where people did not want to be identified as service users.
- The issue of gender. Men and women in the same room for a drop-in group for Asian people seemed a non starter at the time.
- Would service users who were struggling coping in their own lives with very few appropriate services be able to take on managing and running a project ?
We were determined that we would go ahead and do it rather than spending a lot of time thinking about it. The way we decided to start it was to offer something to existing Asian service users. The three main principles we agreed on were:
A safe place where people were not identified with their psychiatric label A user friendly place where people would be looked at as individuals A place where Asian service users views would be taken seriously. This was done through a drop-in once a week which was funded by a small grant from Social Services who were sympathetic, and offered office space in Woodville and expenses to cover office costs.
It soon transpired that people wanted a one-stop service under one roof, an organization that they could trust, that would deal with their day to day problems, give them space and take them seriously no matter how trivial their problem.
Another problem was to get more people involved. We wanted to advertise ourselves without making existing users feel uncomfortable and deal with the taboo associated with mental illness. We started an Urdu/English newsletter in which we set out to address the issue from a statistical point that one in four people suffer from some sort of mental health problem and that it was as common as any other illness. We made regular visits to the mental health unit in North Manchester and were determined that every Asian patient admitted or using the out patients knew about Awaaz .
We took on the role of advocate for existing service users and made ourselves available for Asian people who needed an independent advocacy service. Advocates were users or ex-users of mental health services and knew not only the system but had the added advantage of knowing the cultural and linguistic background.
|